Pediatric and Neonatal Ethics, Policy, and Advocacy
Pediatric and Neonatal Ethics, Policy, and Advocacy examines the ethical dilemmas, policy levers and advocacy strategies that shape clinical decision-making and system-level responses for children and newborns. This session convenes ethicists, clinicians, health-policy experts, legal advisors and advocacy leaders to explore topics such as resource allocation in NICUs and PICUs, consent and assent frameworks for minors, equity-driven policy design, and approaches to balancing parental rights with child best-interest determinations. Panels will unpack real-world ethical case studies—periviable resuscitation choices, withdrawal of life-sustaining treatment, access to high-cost gene therapies—and present frameworks for transparent, multidisciplinary decision-making that include ethics consultation, palliative involvement and culturally sensitive family engagement. Policy tracks will translate ethical principles into actionable advocacy: drafting position statements, shaping reimbursement policy to improve access for complex care, and designing regulations that protect children’s privacy while enabling clinically useful data-sharing.
Workshops will offer clinicians practical tools: structured ethics consultation scripts, decision-aid templates for complex consent discussions, and policy-advocacy playbooks that clinicians can adapt locally. Sessions will highlight legal nuances across jurisdictions—mandatory reporting, minor consent statutes, and the intersection of child protection and clinical care—and will provide sample policy language for institutional protocols. Equity and human-rights perspectives will examine how social determinants and systemic bias influence clinical options and access to cutting-edge therapies, and will propose concrete strategies to prioritise vulnerable populations in policy implementation. The programme also addresses workforce ethics: duty-to-care in epidemics, clinician wellbeing during moral distress, and institutional supports for staff facing ethically fraught decisions. Participants will leave with an ethics toolkit—checklists, consent templates, policy briefs and advocacy starter packs—to move from ethical reflection to concrete system change.
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Key Topics Covered
Consent, Assent & Decision-Making
- Age-appropriate assent methods, surrogate decision frameworks and conflict-resolution models
 - Decision aids and structured family-centred communication scripts for complex choices
 
Resource Allocation & Access to Therapies
- Frameworks for fair allocation in scarce-resource settings and NICU/PICU triage principles
 - Policy approaches to improve access to expensive therapies and ensure equitable distribution
 
- Balancing clinical data-sharing, research needs and child privacy; GDPR/HIPAA implications
 - Ethical use of registries and biobanks with robust consent and governance models
 
Advocacy & Policy Translation
- Clinician-led advocacy playbooks, drafting position statements and influencing payers
 - Institutional policy templates for ethics consults, end-of-life care and equitable access
 
Clinical Impact & Practical Takeaways
Clearer Consent Pathways
Decision aids and structured scripts improve shared decision-making and reduce conflict.
Fairer Resource Use
Transparent allocation frameworks support ethically defensible triage and policy choices.
Stronger Privacy Protections
Balanced governance preserves child privacy while enabling life-saving research and follow-up.
Actionable Advocacy
Clinicians can use policy templates and advocacy tools to influence local and national change.
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